Congenital Heart Disease

Congenital heart disease (CHD) is the most common birth defect. 1 out of every 100 babies are born with CHD with a total of more than 40,000 new babies each year being born with CHD.

We created this page as a resource to offer parents information, insights, and hope in knowing that they are not alone.

CONGENITAL HEART DISEASE RESOURCES

Videos

Hypoplastic Left Heart Syndrome

ASSOCIATIONS & ORGANIZATIONS

  • American Heart Association-  www.heart.org/ - The American Heart Association is the nation’s oldest and largest voluntary health organization. Its purpose is to help prevent America’s No. 1 and No. 4 killers, heart disease and stroke.
  • Children's Heart Projecthttp://samaritanspurse.org - Children's Heart Project works with top-quality hospitals to provide surgery for children who live in countries where the required medical expertise and equipment are not available.-  www.facebook.com/ChildrensHeart
  • Children's Heart Foundationhttp://www.childrensheartfoundation.org/ - The Children's Heart Foundation funds the most promising research to advance the diagnosis, treatment, and prevention of Congenital Heart Defects (CHDs).
  • Children's Heart Surgery Fund - http://www.chsf.org.uk - The Children's Heart Surgery Fund is an award winning charity whose vision is for children to live life, beating heart disease.
  • Children's Heart Foundation - http://www.childrensheartfoundation.org/ - The Children's Heart Foundation funds the most promising research to advance the diagnosis, treatment, and prevention of Congenital Heart Defects (CHDs).
  • Pediatric Congenital Heart Association - 
    http://www.conqueringchd.org- Conquering CHD through collaboration, education, advocacy and research.

BLOGS

  • CHD Quilt - http://www.chdquilt.org/ -  The CHD Awareness Quilt Project is a non-profit organization to promote greater public awareness of Congenital Heart Defects (CHD) and honor those born with Congenital Heart Defects. To have a block dedicated to your child and included in the CHD Awareness Quilts visit our website.
  • Heart Heros - http://heartheroes.org - We provide superhero capes, programs to offer support & funding for Congenital Heart Defects (CHD) research to children & families affected by CHD.

Facebook Pages & Groups

  • Join The Fight: CHD - https://www.facebook.com/JoinTheFightCHD is a website created for people who have been affected by Congenital Heart Defects. This is in no way medical advice, it's only for support and to gain some knowledge of the subject
  • C.H.D Awareness- Congential Heart Disease  https://www.facebook.com/mychdpage - This site is to bring together and educate people who have CHD or love someone with CHD. Congenital Heart Disease is NOT only found in infants, it is found in adults also!!!!!
  • Congenital Heart Defects-https://www.facebook.com/CongenitalHeartDefect
    Sharing news, information and anything CHD related. We're a grassroots community. Admins add patients and parents to children with CHD.
  • Born With A Broken Heart - https://www.facebook.com/BornWithABrokenHeart-We inspire, educate, and support those Born With A Broken Heart by sharing your stories and resources to better your CHD Community.

Books

  • American Heart Association-  www.heart.org/ -
  • Children's Heart Projecthttp://samaritanspurse.org - Children's Heart Project works with top-quality hospitals to provide surgery for children who live in countries where the required medical expertise and equipment are not available.-  www.facebook.com/ChildrensHeart
  • Children's Heart Foundationhttp://www.childrensheartfoundation.org/ - The Children's Heart Foundation funds the most promising research to advance the diagnosis, treatment, and prevention of Congenital Heart Defects (CHDs).
  • Children's Heart Surgery Fund - http://www.chsf.org.uk - The Children's Heart Surgery Fund is an award winning charity whose vision is for children to live life, beating heart disease.

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